Wednesday, November 26, 2014

A time to reflect ..

Well life has been a roller coaster here .. thus a major reason why I haven't been writing much , and please accept my apologies for that. We have been dealing with many things , besides binas fight with Autism. 
Through it all However, we remain in fighting mode spirits up and staying strong. Trying to keep the faith that everything happens for a reason and to be thankful for all we have at this moment in time. Anything can happen in a second that can change your entire world in a blink of an eye and this year has proven this to us on more then one occasion. It Seams perfect timing that tomorrow we are to celebrate and give thanks to all we have and show love and appreciations to those we love, to Those whom stand beside us and have supported our journey. Today as I clean up and prepare for our family dinner tomorrow, I cant help but to think about all that has happened, where we where last year to where we are this year.. and give thanks to God that as we continue to climb this mountain , Sabrina's progress steadily continues and that I can't ask for anything more or be anymore grateful and or thankful just for that.

 

She LOVE going to concerts , we went to 4 thus far.. Paramore and Fallout Boy
One Direction and 5 Seconds of Summer 
Demi Lovato with 5th Harmony and Little Mix
Justin Timberlake

We also recently saw Disney On Ice


She has been many new places and tried new things...


 





6th grade trip NJ Medieval Times
A Skate Skate camp Brooklyn NY
Bowling Team "Team Kitty"
Dance class Tap and Ballet








Every Time this year I start reflecting. Bella continues to fight and make me proud. Reflections mean more now, especially since we started our own recovery journey      ( Oct 2011 ) . Its crazy to think about all that has happened, the good the bad the ugly... and then see where you are today. Not only in a physical sense.. but mentally, as a person , as a parent , as a family ...just everything. Sure I've been told before I maybe over analyzing  things at times.. but I'm sorry I am so not the person I used to be, and my family definitely forever changed. We are all definitely in a different place now, a better place.. and reflecting may remind me of past lessons but it also feeds me and motivates me for how far we come, how proud I am of us all and excited to think what the next year may bring. So although thanksgiving is just a "dinner" its abit more to me then just that. For me its the beginning of our yearly reflections.. 
I think its a great time for everyone to stop, take a step back and reflect. 

It helps us learn , grow and keep us focused to stay on the right track! 


Summer School Play and Playing around :) 

Monday, November 17, 2014

Parasite, Nematodes, Microbes and Autism

Parasites? Nematodes? Microbes? Autism?        YES! 



One of many things I have learned on this journey is that there is always something more to learn. Now I have heard of parasites before, you know the worms and stuff dogs can get. But humans? We deal with parasites? I didn't think so, and had not a clue how wrong I was! Typically a human body will carry many microbes with them throughout a lifetime. The problem occurs when they override and start to make complications in our bodys systems. There are good guys and bad guys and like everything else, a delicate balance is what the goal is to achieve for anyones health. Now typically a healthy person can tolerate,regulate even dispose of any microbes when need be. But sadly many of us are not as healthy as we think, and with Autism...well thats a no brainer...our kids are VERY sick medically. they have all sorts of issues, metabolically ,immune, gut I mean the list is endless. Since we know they are already compromised, we know that they are more vulnerable to these microbes and will have a harder time hosting and fighting them off. That brings us to our last homotoxicology protocol, which was focused on all I spoke of. We started intercellular and went after some Parasites and the harder Nematodes this spring. In May we say Mary, got our readings and protocol and the "heads up" as to what to expect. Knowing this was going to be a tough one, spread it out over a 3 month period to release our attack on the bad guys. 
It started off with Parasites and it went good. She was able to finish school with little to no issues. She did show some signs of anxiety, OCD, anger, emotional, impatience but nothing that we couldn't handle or redirect. Honestly it wasn't too bad where I though perhaps this wasn't an issue, what did I know? All I knew is that it seamed to go very well. THEN the Nematodes started. I was warned. Mary said that this was much more tougher. These were harder guys to get so that we may see more regression at first before the clearing. I have been told this before, but never saw a huge reaction. So onward we went. This started in July. Well this one proved to be quite a doozy! She was in summer school and started to have behavioral issues. She was going from 0 to 60 without any precursors so no one knew when she would meltdown.. The biting, smacking, kicking, hitting, swearing not happy kid has shown herself. Luckily I had a receptive teacher whom knew what we were doing and this poor guy did all he could to help me get Bella through the summer. It was hard, I did have to go pick her up twice and got a call quite a few times. This is not and was not typical for Bella. Her teacher had her last year and he noticed the change. She went from a happy, laid back ,chill kid to crazy mad woman. I am so glad that he was a trooper and got Bella though the summer. I did keep her home alot , but I didn't care. I just wanted to fight the bad guys and get her through it. I have to say it was the toughest protocol we have done. When this one was at its end I remember it still not getting much better. I remember saying is she going to get happy again and come through this like all the other times better? I was so scared it wasn't' gonna happen , I was so happy to end it to see and find out. 


                                      First day of 7th grade 2014

It took about a week but she started to show signs of "clearing". The blocked language subsided and her communication was back and even better. Cognitively and receptively she was better. She was eating more and starting to enjoy things again. Laughing more, less obsessive thinking, less OCD , less behaviors and 0 to 60 became nonexistent. 
I thought we were cleared. I took a deep breathe and thanked God for getting us through that mess. Well I spoke way too soon. We had an appointment to see mary again after it ended but I had cancelled it due to financial stress. BIG MISTAKE. Now a second week goes by all is ok, then the third was the first week of school. Back to Middle school starting 7th grade. Same school, teachers kids..nothing new. The year started good! She was happy excited to go, couldn't wait to get to "jr high". Well a few days in she had learned her only "typical" friend moved so her lunchtime became a huge issue. Her BFF Sapphire was gone. Bella was Devastated. That began the initial displeasing of the year.. she had such a hard time she was eloping from lunch, having fits and had to be removed from the cafeteria. It got to the point they made an alternative place for her to go and have lunch.  I got a few calls but we (teachers and I) were still able to keep her calm and redirect in the beginning. By the second,third week she started to lose more control. Self injury, lashing out at others physically and verbally. Eloping from classes.  All the old manifestations were coming back and in full swing at school AND at home. At home I was able to redirect (for the most part) but school, not so much. I was called almost daily and up there weekly and one of those calls I got was to go up and get her. Well in a mist of a meltdown she scratched her TA and it drew a little blood. Long story shot, they suspended her. I had the fight of my life with the school principle and the head of special ed, and even went to the superintendent about all this. Manifestation of a disability is not grounds for suspension, I did end up getting it removed from her record but that didn't help the situation of how they can deal with her at school when and if these manifestations happen. I was informed they would hold her down arms and legs when she was on the floor flaring. My heart sank. In NO WAY is it EVER OK to hold down MY child Especially during a meltdown! that amplifies it and makes it worse! And it did! I had many meetings and eventually a CSE in which a FBA was made and I also made it clear she was going to be staying home now. I explained the medical issues and the puberty and combination of things were causing her manifestations. With a medical doc note from her MAPS I was able to get her approved for home teaching for now. I am beyond upset about what happened and will be in more further detail in another blogpost, but to get you up to date ... all this was going on , I was in touch with her MAPS doc as well as Mary our homotoxicologist. PUBERTY seams to be a huge culprit for her issues then add the already autism BS and detox on top. MAPS doc, related it to allergies and puberty biological changes. Mary, related to those 2 things but also she told me that a full moon phase had passed since we last ended our protocol and it was very possible the parasites came back or whatever didn't get killed off awoken or stirred up the microbes ..also her blood sugar was dropping from that stress which made her go to 'fight or flight' mode and thus behaviors. Her MAPS gave her a cortisone IV for to help with allergies, and then Mary gave me a protocol to do until I could get back to see her. To help regulate her, started end of September. It helped but not enough for the school staff to handle so HOME was the way to go for sure. Once these kids get out of elementary they treat them hard, police,security,pin downs, quiet rooms...sorry..NOT my kid!

Anyways, so we been VERY busy with all the drama...trying to get Bella regulated,happy and her schooling situation taken care of. It got very hard. The obsessive thinking and OCD was the worst. Well we finally got to see Mary yesterday. Learned more.. PANDAS flare ups were happening and everything that was going on was because the microbes were causing inflammation throughout because they were vamped up and unbalanced. Positive thing is , it can be and will be fixed. Second thing is, Mary is happy to see her readings were high then low. Low would signify her energy was low, but that wasn't the case. That would of made it harder..instead its high which she explained was sabrinas systems are doing the work. her body is taking the "signals" and utilizing them, and dejunking herself but the dump truck wasn't moving fast enough thus leading to the PANDAS flare, inflammation and behavior manifestations. Bella looked healthy, she grew taller ,gained weight its distributing properly..her body is fighting this and winning, just needs a little more help. So with that mary wants to move forward with just supporting her body through the puberty. She is due for her period anytime now, and after the body starts that cycle is when the hormones,microbes and all the other fun stuff will beable grow, expand then regulate and calm. Mary is very optimistic that Bella is going to come out of this in the end, awesome. We started with mary Aug 2013 an I have to say everytime we have utilized a protocol she gave for B, Bella has always gotten better and improved... it sucks this takes time and ALOT of money..but its working and worth it. We have to find a way to keep this going. Our bodies need to be detoxed off all sorts of toxins we come in contact with, but noone more so then a person with Autism. The immune system has been bulldozed and in order to help that and the rest of the body to heal recover and re regulate.. you have to take out the trash and thats what we started to do and what we plan on finishing through, even if it takes another year or so... 

More info about Parasites and Autism