More things make sense to me now.
Medical issues arose that I didn't know about.
We learned , when compared , to a handful of tests that were done back in Sept of 2011 BEFORE we started/implemented any food/diet change and bio-medical procedures ( that begun Oct 2011) some POSITIVE things. Since then, I am happy to share we learned that her gut has cleaned up and is in a better place. Her liver is also in a better condition. Her mitochondria was working alittle better and also that her nutritional deficiency had improved as well. Her thyroid came back to be OK, thank god! The doctor had praised me that I had laid down the foundation that helped her to get better and that she had indeed begun to heal. She may not be perfect yet, where we want her..BUT..I did get her on the right track with implementing the food change to organics natural non GMO's. The diet to GFCFSF and removal of the food allergies that had shown from her IgG bloodwork. And with adding the supplements Probiotics, digestive enzymes, multi vitamins, fish oil, Vit D, Vit C, Selenium Magnesium, CoEnzyme Q10, B complex, and melatonin. That made me feel so good that I had "happy tears" when speaking with him in his office.
He said to me "I don't know if anyone has ever told you that you have done a good job...so I Am going to tell you...YOU HAVE DONE A GOOD JOB!"
It was vindication to me, I KNEW it!
I KNEW she was getting better, I KNEW something was working I saw it, I felt it...
she expressed it! I was so full of JOY when hearing that. Especially coming from a "white coat" lol He is one whom is aware of what is going on with our kiddos, and one whom understands that Autism is medical, is injuries and that there are ways to help our kids. I am very grateful to have found one like he, as I know very well ...
a good medical doc whom "gets it" is very hard to come by.
Although it started out with some good news, I was preparing myself for what was yet to be discussed...he had found out more information about whats going on with My Bina.. He re-ran the tests that were run from 2011, but, he also ran a bunch of tests that were never done yet as well....
He went through it all in detail. Everything from tests I had done in 2011,
BEFORE diet change and before biomeds... and everything most recent testing.For me to repeat that all to you would take a very long draw out post so basically I am going to point out a few Key factors. FIRST, her lead and mercury levels in the blood or within range...this is typical as the last vaccine she has had was at age 6 and heavy metals do NOT stay in the blood and urine for very long. It ends up "hiding" in your internal organs which chelation / homotoxicology is used to remove them. IF These were done at age 2, they would of shown and would be off the charts. The best time to do blood and urine when looking for those metals is right when you suspect that your child has been harmed. So that I wanted to share and make clear. Even still, it has been years and all the junk has made her organs its home by now.
Second, her titters showed positive for many of what she was already vaccinated for. The DTP was showing so high in her system that the NY State health board called my doc asking if she was quarantined if she had whooping cough! My doc was like are you kidding me? Isn't that the "point" of vaccination , its showing her "immunity" to it. I know its not immunity its showing, I know what it really means is that its showing those diseases are still running rapid inside my child and is NOT helping with the situation going on in her body. Its just adding more stress to it....anyways thought to share that "kicker"
She showed positive for Lyme antibodies (23), not the deer tick kind but apparently the type that alot of ASD kids seam positive in. It was a shocker to me, also some other infections like antibodies HHV6 and CMV ( roseola virus..dust-mite related? The doc mentioned that dust-mites can carry disease and its possible for it to be passed and react as an allergy too correlation would make sense..hummm) and strep antibodies , not enough to call it PANDAS but she did have strep one time when she was like 7 or 8 so that would be where that came in. It was pretty insane to see those come up positive. Again certain types that seam to be positive in all these kids... things that make you go Hummmmmm
The new big thing I learned was that she is NOT methylating. Her system is shot. Its working at about 35%. Also, She did show for the MTHFR Gene as mutated , as it seams , again , all these kids have in common. Her B vitamins are high and floating around in her and not being used as her body is not able to use them due to the methylation process being disrupted. Methyl B12 shots were recommended. Another biggie was BH4 and the folic acid..again due to the methylation not working right its not right. It seams to be a domino effect with this. Some parts work, others don't..so basically there are a few things we can do and try to implement in hopes it will help treat this. With implementing the proper support, hopefully it will help her body jump start this system.
The Methylation system above, and whats going on in Bina's below....
If you haven't had this system tested already, I highly recommend that you do. And hopefully it will be with a doc who understands the system!
More Info, Click on title :
MTHFR-Genetics, Autism and Disease
ADDING METHYL- GROUPS INTO THE METHYLATION CYCLE:
Methyl-B12: A Treatment for ASD with Methylation Issues
Switching Off Disease With Methylation
The Master Switch
Methylation is critical for human survival. Think of it as a switch that turns genes on and off. Methylation regulates regular cell division, ensuring cells divide at a healthy, balanced rate. When methyl groups bind to certain DNA sequences in the genome, modifying the DNA’s function, this is known as epigenetics.
DNA methylation changes the gene expression pattern in cells so that the cells remember where they have been. For example, cells that are pancreatic islets during embryonic development remain pancreatic islets without needing continual signals that they need to remain islets. DNA methylation also inhibits expression of viral genes and other damaging elements woven into the genome of the host over time.
Normal development can’t continue without DNA methylation. That’s because methylation allows different cells to morph into different tissues even though they have the same genes. Throughout our lives, as we’re exposed to environmental and dietary changes, DNA methylation continues, which can lead to disease.
A reduced ability to synthesize DNA and RNA due to methylation cycle defects is particularly challenging for cells that already have difficulties meeting their needs for DNA and RNA synthesis under normal conditions. The cells that are most susceptible to these defects include bone marrow, lymphocytes, erythrocytes and neural tissue. The highest concentration of RNA in the body resides in the nervous system, which therefore has the highest methylation requirement. If methylation isn’t progressing properly, neither is cell synthesis, making it nearly impossible to recover from tissue damage.
Read MORE:
MTHFR AND VACCINES- If your child has this.
And you are still contemplating vaccinating....
I Highly recommend not only to look further into vaccines but in the meantime to stay away from LIVE VIRUS VACCINES AND MERCURY CONTAINING VACCINES (flu or any multi-dose vaccine) for that is a HUGE red flag to high risk Injury (like my child)
Biological Evidence of Significant Vaccine Related Side-effects Resulting in Neurodevelopmental Disorders
Another big thing that I already knew, but didn't exactly know what the heck was going on is her immune system. I knew it was indeed compromised. But I didn't know if it was an immune over run, destroyed or auto immune issues. I got that answer as well. He says she had a ATypical immune dysfunction. Which means it was OK until it was over run and injured by outside environmental factors, aka vaccines. He believes she was not born with a immune disorder or auto immune issue, but that this was caused. She was born with a OK system, not the strongest but OK, and being susceptible it was taken over, run over with a freight train. This is causation. When the immune system is over run and attacked it creates chronic inflammation and oxidative stress. Vaccines, allergies , toxins...so on and so forth... there are triggers* to create a flare up. He says her body CAN NOT tolerate any vaccines. A medical exemption was given to me for any further "school mandated" vaccines.
Which brings us to her Glutathione not working properly...surprise surprise...
Another big thing all these kids have in common, Glutathione NOT working
and High Oxidative Stess...
He has also found her to have a metabolic disorder and her amino acids don't work..all of these things they FIND in ALL ASD kids when properly tested. Are bells going off yet?! I hope so!
So basically, I ended the conversation with him with this question....
"What do I tell people what is wrong with her?"
He stated this: "you tell them that...
She has a Metabolic disorder, mitochondria disorder
she doesn't methyalate , she can't detoxify, her amino acids don't work.
Her autonomic nervous system is on fire going about 100 miles an hour.
Her Adrenals are stressed. She has an Atypical immune dysfunction and that
her body has been over run.
This is Epigenetic...
Now mind you all, this is just addition to what I already found out.
The food allergies, the nutritional deficiencies the environmental allergies ...
ALL ASD kids seam to have these issues...there IS a reason why...
"Autism" is Medical, a causation...
I am hoping that sharing our information helps all of you find your
answers for your children. Thats all we want to do.
Is HELP, as I have stated time and time again...
If I knew back then what I know now, she would of NEVER been vaccinated.
If I Knew I Had the CHOICE I would of stood strong. I was lied to and told I did
not have that choice, and was bullied into vaccinating. I was young scared
and did not have the access we all have now to get information about anything..
Also If I knew then what I know now after diagnosis...
She would of had a better chance to a closer full recovery.
Thats why I share what I do...
the earlier you get the right help the better chances of the outcome!
MORE about Epigentics
This was a mentally and physically draining day for me. Sharing how I felt and what I went through is hard..but its like When you know some facts, when you feel certain things, when you research and learn all you can and KNOW IN YOUR HEART what happened to your child, then FINALLY get that validation...
that your NOT crazy! That YOU WERE RIGHT!...
It can and will take a toll on you.
So many mixed emotions, Anger, Joy, Fear, happiness , confusion , seeing straight...its CRAZY! I have, like everything else, come out even stronger.
With more will, more assertiveness, more strength to even further help my child ,
to even further want to help ALL of these kids, the moms and dads...
To let you know to
ALWAYS LISTEN TO YOUR GUT! You are NOT Crazy!
YOU know whats BEST for your kid, and to STAND Firm and Strong!
I Hope this helps in preventing other kids lives from being turned upside down. And I also hope this helps other families that are already in this boat we have come to feel ourselves drowning in. Just know that there IS HOPE!
We have our new protocol to help with the new information. Just some added supplements to what I was already implementing. BH4, SS-Acetyl Glutathione, Nrf , Mulit mineral, Vit E, Vit A, higher Vit C and D and methyl B12 ( which I got as a nasal spray cause I chickened out about the shot, which is how we will be administering it next time) Stopped the B complex since its not being used in her body, waiting for her methylation system to hopefully kick in and work better to where the b's will be used properly. Her diet is to remain the same.
Our next step in our journey is to get her to NYC.
There is a homotoxicologist that I want to work with in regards to
Detoxifying and De-juncking Bella's body. I will get more into all of that
in another post.
So thats the Update, where we stand right now.
I see the light at the end of the tunnel...
now we just have to keep going until we reach it.
And like many others,
Trying to save up and raise money for
the next adventure......
Chins UP! Spirits UP! ~ Heather
